Welcome to our Blog:
Living and Traveling with
Muscular Dystrophy
Since 2019, we have been gathering experiences together—honestly, practically, and with a good dose of perseverance.
Here you can read about:
• Wheelchair-accessible travel
• The impact of a muscle disease (LAMA2MD)
• Traveling with limited mobility
• Practical tips that we ourselves have missed
I'll start with our most recent adventures and take you back in time step by step.
This way, you'll not only see the destinations, but also our growth, challenges, and victories.
This blog is for anyone who:
travels with a disability
-
knows someone with a disability
-
is looking for inspiration
-
is looking for help and coaching in living in a family with a ‘backpack’
-
or is just curious about how we do it.
✨ Travel with us. Grow with us.
Our goal
This blog didn't start with a dream to travel.
It started with a feeling.
The moment we heard that Lanah has a muscle disease (LAMA2MD), a lot changed.
Visions of the future became questions.
Certainties became uncertainties.
And somewhere amid all those emotions, we made a silent promise to ourselves:
We are going to enjoy life as much as possible and do what we have always loved to do.
Travel, we will show her the world and all its beauty!
In her own way.
At her own pace.
Traveling is not something we take for granted.
It involves planning, calling, inquiring, doubting, and adapting.
It involves hoping that a “wheelchair-accessible room” is truly accessible.
It means extra suitcases, aids, and always having a plan B or plan C.
But it also means Lanah's eyes shining when she sees something new.
It's making memories together that no one can take away from us.
As mom and dad, we don't want to teach her what she can't do.
We want to let her feel what she can do.
With this blog, I want to share honestly what that looks like.
Not just the beautiful photos, but also the fatigue,
the frustration when something isn't right, the fear of whether everything will be okay.
Because I know there are other parents who:
feel the same way.
are searching.
have doubts.
also have many fears.
Who sometimes feel alone in the practical and emotional aspects of traveling with a disability.
If our stories can make even one mother or father think:
“Maybe we can do this too...”
then I have achieved my goal!
I am writing this for Lanah.
So that later she can read back how much strength she has given us.
How she taught us to dream bigger than my fear.
And I am writing this for you, dear reader.
You are not alone!
Our children are stronger than we sometimes dare to believe.
Because freedom is not about how many steps you can take,
but about the choice to take them anyway.
And that love pushes harder than fear can ever hold you back.
6
Vakantie Landen
02
Winter Vakanties
6
Zomervakanties