There is no yin without yang.
no shadow without sun.
No blooming flower without rain.
In our blogs, we mainly highlight the "light" in our lives.
That doesn't mean the hefty shadow side isn't there.
How come? Due to the many appointments surrounding Lanah's care and our own.
Added to that are the regular acute hospitalizations, financial issues,
organizational issues, chronic worry about your child, and the psychological toll it takes on the family.
Who is involved in caring for Lanah?
MUMC+, Radboud UMC, the Center for Home Resuscitation, Adelante, and the municipality, and various smaller agencies regarding useful aids
such as wheelchairs, a bed, splints, a corset, etc.
A “medical backpack” creates a continuous “energy-guzzling” process, often a misunderstood and inadequately supported theme.
Then I can hear you thinking...
Isn't this the same with other families? Yes, it is!
However, everyone has their own "backpack” filled with their own diagnoses, social contacts, medical contacts, worries,
feelings and energy.
This makes many challenges similar
but each person and family receives and processes this differently.
We learned to let go of striving for structure or a “quiet” life.
We cannot change the situation, but we can change how WE deal with it.
